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Prenatal testing and disability rights
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Prenatal testing and disability rights

Author: Erik Parens; Adrienne Asch
Publisher: Washington, D.C. : Georgetown University Press, ©2000.
Series: Hastings Center studies in ethics.
Edition/Format:   Book : EnglishView all editions and formats
Database: WorldCat
Summary:
"In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover.
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Details

Title: Prenatal testing and disability rights /
Database Name: WorldCat
All Authors / Contributors: Erik Parens; Adrienne Asch
ISBN: 0878408037 (cloth : acid-free paper); 9780878408030 (cloth : acid-free paper); 0878408045 (paper : acid-free paper); 9780878408047 (paper : acid-free paper)
Notes: Bibliography: Includes bibliographical references and index.
Content: The disability rights critique of prenatal genetic testing: reflections and recommendations / Erik Parens and Adrienne Asch -- The current state of prenatal genetic testing in the United States / Cynthia M. Powell -- Somewhere a mockingbird / Deborah Kent -- Why I had amniocentesis / Mary Ann Baily -- The experience of disability in families: a synthesis of research and parent narratives / Philip M. Ferguson, Alan Gartner, and Dorothy K. Lipsky -- Ways to limit prenatal testing / William Ruddick -- Disability, prenatal testing, and selective abortion / Bonnie Steinbock -- Technology and the genetic imaginary: prenatal testing and the construction of disability / Bruce Jennings -- Why members of the disability community oppose prenatal diagnosis and selective abortion / Marsha Saxton -- On the expressivity and ethics of selective abortion for disability: conversations with my son / Eva Feder Kittay with Leo Kittay -- The meaning of the act: reflections on the expressive force of reproductive decision making and policies / James Lindemann Nelson -- Assessing the expressive character of prenatal testing: the choices made or the choices made available? / Nancy Press -- Why I haven't changed my mind about prenatal diagnosis: reflections and refinements / Adrienne Asch -- Drawing lines: notes for policymakers / Dorothy C. Wertz -- Line drawing: developing professional standards for prenatal diagnostic services / Jeffrey R. Botkin -- Prenatal genetic testing and the courts / Pilar N. Ossorio -- Reflections from the trenches: one doctor's encounter with disability rights arguments / Steven J. Ralston -- What difference the disability community arguments should make for the delivery of prenatal genetic information / Barbara Bowles Biesecker and Lori Hamby.
Description: xvi, 371 p. ; 23 cm.
Contents: The disability rights critique of prenatal genetic testing: reflections and recommendations / Erik Parens and Adrienne Asch -- The current state of prenatal genetic testing in the United States / Cynthia M. Powell -- Somewhere a mockingbird / Deborah Kent -- Why I had amniocentesis / Mary Ann Baily -- The experience of disability in families: a synthesis of research and parent narratives / Philip M. Ferguson, Alan Gartner, and Dorothy K. Lipsky -- Ways to limit prenatal testing / William Ruddick -- Disability, prenatal testing, and selective abortion / Bonnie Steinbock -- Technology and the genetic imaginary: prenatal testing and the construction of disability / Bruce Jennings -- Why members of the disability community oppose prenatal diagnosis and selective abortion / Marsha Saxton -- On the expressivity and ethics of selective abortion for disability: conversations with my son / Eva Feder Kittay with Leo Kittay -- The meaning of the act: reflections on the expressive force of reproductive decision making and policies / James Lindemann Nelson -- Assessing the expressive character of prenatal testing: the choices made or the choices made available? / Nancy Press -- Why I haven't changed my mind about prenatal diagnosis: reflections and refinements / Adrienne Asch -- Drawing lines: notes for policymakers / Dorothy C. Wertz -- Line drawing: developing professional standards for prenatal diagnostic services / Jeffrey R. Botkin -- Prenatal genetic testing and the courts / Pilar N. Ossorio -- Reflections from the trenches: one doctor's encounter with disability rights arguments / Steven J. Ralston -- What difference the disability community arguments should make for the delivery of prenatal genetic information / Barbara Bowles Biesecker and Lori Hamby.
Responsibility: edited by Erik Parens, Adrienne Asch.
Additional Physical Format: Online version: Prenatal testing and disability rights. Washington, D.C. : Georgetown University Press, c2000 (OCoLC)606462128
Online version: Prenatal testing and disability rights. Washington, D.C. : Georgetown University Press, c2000 (OCoLC)608390526
Year: c2000.
Publisher: Washington, D.C. : Georgetown University Press,
Standard Numbers: LCCN: 00026361; National Library: 100971873
Class Descriptors: LC Class No.: RG628; Dewey No.: 176
Series: Hastings Center studies in ethics; Variation: Hastings Center studies in ethics.
OCLC No.: 43615470

Abstract:

"In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover.
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"[E]ssential reading for anyone working in perinatal medicine and genetic counseling." -- Health Progress

 
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