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| Title: | Prenatal testing and disability rights / |
|---|---|
| Database Name: | WorldCat |
| All Authors / Contributors: |
Erik Parens; Adrienne Asch |
| ISBN: | 0878408037 (cloth : acid-free paper); 9780878408030 (cloth : acid-free paper); 0878408045 (paper : acid-free paper); 9780878408047 (paper : acid-free paper) |
| Notes: | Bibliography: Includes bibliographical references and index. Content: The disability rights critique of prenatal genetic testing: reflections and recommendations / Erik Parens and Adrienne Asch -- The current state of prenatal genetic testing in the United States / Cynthia M. Powell -- Somewhere a mockingbird / Deborah Kent -- Why I had amniocentesis / Mary Ann Baily -- The experience of disability in families: a synthesis of research and parent narratives / Philip M. Ferguson, Alan Gartner, and Dorothy K. Lipsky -- Ways to limit prenatal testing / William Ruddick -- Disability, prenatal testing, and selective abortion / Bonnie Steinbock -- Technology and the genetic imaginary: prenatal testing and the construction of disability / Bruce Jennings -- Why members of the disability community oppose prenatal diagnosis and selective abortion / Marsha Saxton -- On the expressivity and ethics of selective abortion for disability: conversations with my son / Eva Feder Kittay with Leo Kittay -- The meaning of the act: reflections on the expressive force of reproductive decision making and policies / James Lindemann Nelson -- Assessing the expressive character of prenatal testing: the choices made or the choices made available? / Nancy Press -- Why I haven't changed my mind about prenatal diagnosis: reflections and refinements / Adrienne Asch -- Drawing lines: notes for policymakers / Dorothy C. Wertz -- Line drawing: developing professional standards for prenatal diagnostic services / Jeffrey R. Botkin -- Prenatal genetic testing and the courts / Pilar N. Ossorio -- Reflections from the trenches: one doctor's encounter with disability rights arguments / Steven J. Ralston -- What difference the disability community arguments should make for the delivery of prenatal genetic information / Barbara Bowles Biesecker and Lori Hamby. |
| Description: | xvi, 371 p. ; 23 cm. |
| Contents: | The disability rights critique of prenatal genetic testing: reflections and recommendations / Erik Parens and Adrienne Asch -- The current state of prenatal genetic testing in the United States / Cynthia M. Powell -- Somewhere a mockingbird / Deborah Kent -- Why I had amniocentesis / Mary Ann Baily -- The experience of disability in families: a synthesis of research and parent narratives / Philip M. Ferguson, Alan Gartner, and Dorothy K. Lipsky -- Ways to limit prenatal testing / William Ruddick -- Disability, prenatal testing, and selective abortion / Bonnie Steinbock -- Technology and the genetic imaginary: prenatal testing and the construction of disability / Bruce Jennings -- Why members of the disability community oppose prenatal diagnosis and selective abortion / Marsha Saxton -- On the expressivity and ethics of selective abortion for disability: conversations with my son / Eva Feder Kittay with Leo Kittay -- The meaning of the act: reflections on the expressive force of reproductive decision making and policies / James Lindemann Nelson -- Assessing the expressive character of prenatal testing: the choices made or the choices made available? / Nancy Press -- Why I haven't changed my mind about prenatal diagnosis: reflections and refinements / Adrienne Asch -- Drawing lines: notes for policymakers / Dorothy C. Wertz -- Line drawing: developing professional standards for prenatal diagnostic services / Jeffrey R. Botkin -- Prenatal genetic testing and the courts / Pilar N. Ossorio -- Reflections from the trenches: one doctor's encounter with disability rights arguments / Steven J. Ralston -- What difference the disability community arguments should make for the delivery of prenatal genetic information / Barbara Bowles Biesecker and Lori Hamby. |
| Responsibility: | edited by Erik Parens, Adrienne Asch. |
| Additional Physical Format: | Online version: Prenatal testing and disability rights. Washington, D.C. : Georgetown University Press, c2000 (OCoLC)606462128 Online version: Prenatal testing and disability rights. Washington, D.C. : Georgetown University Press, c2000 (OCoLC)608390526 |
| Year: | c2000. |
| Publisher: | Washington, D.C. : Georgetown University Press, |
| Standard Numbers: | LCCN: 00026361; National Library: 100971873 |
| Class Descriptors: | LC Class No.: RG628; Dewey No.: 176 |
| Series: | Hastings Center studies in ethics; Variation: Hastings Center studies in ethics. |
| More information: | |
| OCLC No.: | 43615470 |
Abstract:
"In these essays, health care professionals, scholars, and members of the disability community debate the implications of prenatal testing for people with disabilitties and for parent-child relationships generally."--cover.
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"[E]ssential reading for anyone working in perinatal medicine and genetic counseling." -- Health Progress
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Related Subjects:(9)
- Prenatal diagnosis -- Moral and ethical aspects.
- Prenatal diagnosis -- Legal status, laws, etc.
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- Ethics, Medical.
- Genetic Testing.
- Pränatale Diagnostik
- Ethik
- Aufsatzsammlung
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